Between a verdict and hope
A new book is showing what it is like to live with Multiple sclerosis from different anglesSvetoslav Stefanov , Sofia
Multiple sclerosis (MS) is among the least known illnesses. Most specialists consider it unpredictable, changeable and generally incurable. And what is even more fearsome – it attacks mainly active people in their 20s and 30s.
In her new book The Verdict famous Bulgarian journalist Neyka Krasteva presents a very diverse overview of MS based on the personal stories of several people suffering from this disease as well as interviews with doctors and research on the approach towards MS by different institutions. The book is a passionate call for help to all those across the globe, no less than several million, who are desperately battling the illness although most are told it is a hopeless battle.
The main protagonist is Andrey, now 45 years old, who – now in wheelchair – has lived in a constant fight with MS for the past 18 years. Through his very personal story Neyka Krasteva is disclosing the negligence of the institutions, the perfidy of the pharmaceutical companies and the helplessness of today’s medicine to help all those suffering with MS.
At the age of 27 Andrey was forced to hear a phase from a doctor that sounded like his final verdict. “Sorry, buddy, it is over with you.” He didn’t give up, he refused to stop living and sink into self-pity. Instead, he decided to fight the illness, trying to live his life as normal as possible. With all the inconveniences MS is causing to its victims. So did the other protagonists of the book. But still they are not a majority.
The book is really a verdict. But not for those who are “invaded” by MS and are forced to live with it. It is a verdict to all the institutions which, figuratively speaking, shrug off the issue and let people deal with the illness by themselves. It is a verdict to pharmaceuticals which prefer to make cash with useless medicines instead of putting helpful therapies in place. It is a verdict to all those NGOs who are competing for the attention of the people with MS without actually providing the help they promise.
The book is passionate and masterly written. It tells a lot about people being touched by MS, directly or indirectly, and about society’s attitude towards the problem. And despite so many verdicts it also brings some hope.
Recently the book was published in English. You can find it here